The Prince Philip Trust Fund Background
The Prince Philip Trust Fund was an initiative by the first Mayor of the newly created Royal Borough, the late Sir Christopher Aston and was founded in 1977, the year of Her Majesty The Queen’s Silver Jubilee. It was founded out of gratitude to His Royal Highness The Duke of Edinburgh for his service to the community during the first 25 years of the Queen’s reign.
The current population of the Royal Borough is over 146,000 and beneficiaries of the Trust Fund must live within its administrative boundary covering an area from the Walthams to Wraysbury and Sunningdale to approaching Henley .
The Prince Philip Trust Fund generates its income from interest on its investments and from the proceeds of fundraising events such as this. The Trustees meet twice a year to distribute funds in the interest of social welfare and to encourage greater understanding and appreciation of the arts, literature and science. They also hope to advance the education and development of young people, towards physical , social ,cultural and intellectual maturity , particularly in the field of voluntary service.
Over the 40 years we have dispersed over £1.6 million to some 580 local organisations and individuals. We are celebrating our 40th anniversary in 2017 making this a very significant year for us.
We work closely with The Rotary Club of Windsor and Eton who support us in our Fundraising efforts.
Most recently In November 2016 , we distributed £38,000 to a range of 23 applicants .
We would hugely appreciate your support as part of The Windsor Half Marathon.
An Example of Our Support for One Great Cause;
In 2016 The Prince Philip Trust supported Selena’s family to purchase a Tobii eye gaze computer- a machine that retails for around £15000 .
Selena has been diagnosed with Rett Syndrome . It is a disorder of the nervous system caused by spontaneous mutation on the X-chromosome and, although present from birth, has become more and more evident in the time since her second birthday. Rett Syndrome affects girls predominantly, leaving them aware and alert although often without the ability to express themselves in any way.
For example, seventeen girls (1:10000) born today will meet their developmental milestones in their first year, bringing joy and happiness to their parents, grandparents, siblings and friends. First initial signs of regression will occur nine months later , shortly after which, parents of those girls will be told that their ‘perfect & healthy’ looking girl will require 24/7 care, relying on others for almost every aspect of her life.
The girls will lose previously acquired coordination and speech skills including language, hand use and, in most cases, walking. They may develop seizures, breathing difficulties; swallowing difficulties, scoliosis, etc. The list is long & daunting. The eye remains the only muscle retaining control.
How can a person without the ability to communicate through speech or hand movement demonstrate their needs and intellectual abilities? How can Selena ask for a drink, say that she is tired, or is in pain? Using Tobii technology she can.
Selena is now much more motivated, less anxious and happier when having access to Tobii. Although Selena can’t talk she has a lot to say!
Selena’s family are thrilled and thankful to the Trust for allowing Selena to challenge the traditional assumption of severe cognitive impairments in girls with Rett Syndrome.
Selena takes her computer to school and we have positive feedback from her teachers.
On a daily basis Selena fights Rett Syndrome and is struggling within a body that won’t comply, but with Tobii she has been equipped with a tool to live a demonstrably more fruitful and meaningful life.
The Prince Philip Trust has opened new avenues for those opportunities to arise , and to spread awareness about Rett Syndrome .
We do have a limited number of Race places available for an entry fee of £20 and a pledge to raise £350.
For more information and to book your place in the Windsor Half Marathon 2017 running on behalf of The Prince Philip Trust Fund please contact Joanne: firstname.lastname@example.org